On the Right Road Left

Coming down off prednisone is almost never a good time for most people. Especially when you're not tapered down. 40 mg twice a day for 20 days and then a sudden stop causes many different reactions in many people. When I'm being treated for a lupus flare up I'm always tapered down, however when it's "just" my asthma, they don't feel the need to taper. Why is that? They're afraid of lupus and not of asthma fighting back?

So, my body hates me at moment. Hurts to touch, hurts when my hubby gives me a hug, which in return makes him hurt and makes me hurt even worse inside. I've resorted to wearing sports bras that are a little big during this transition, although I have to go to work tomorrow so a real bra is going to be necessary and I'm dreading that. I apologize for all the bluntness and probably TMI you'll come to read as this keeps going. I have learned I hate sugar coating things like this, and I gives props to others who can tell it like it as well. "No, it's not too bad, the pain is minimal" gets you nowhere and people start to get annoyed with you're little white lies. Go ahead, if they're your friends and family, they can handle it. If not of course, I don't blame you for keeping it to yourself, some people just can't handle it.

I plan on taking up a beginners yoga class tonight granted I can find something comfy enough to wear. I hear that yoga and pilates helps dramatically with asthma and chronic pain that comes along with lupus and other "illnesses" of which I'm grateful I don't have.

Anyone else have any suggestions on how to make coming off prednisone easier or even dealing with the pain from RA or lupus every day?